The London Vulval Pain Support Group
We provide confidential support and advice for women in the London area who suffer from vulval pain, usually due to vulvodynia and vestibulodynia, but sometimes the pain may also be from an associated condition such as:
- thrush
- interstitial cystitis
- vulval eczema
- lichen sclerosus
- vaginismus
The group started in 1994 and was active until 2000, with the present group formed in March 2003.
Group aims
With a focus on the London area we aim:
- to provide mutual support in coping with the physical and emotional effects of vulval pain through meetings and phone and email contact
- to create greater awareness of vulval pain within the medical profession, the media and among women with the condition
- to lobby for more research to be done into the causes of vulval pain and developing new treatments and to keep abreast of the latest information by attending medical conferences and fostering closer links with vulval pain specialists
- to encourage links with other vulval pain groups in the UK and abroad such as the Vulval Pain Society, Cross Pennines Vulval Pain Support Group, UK Lichen Planus, Vulval Health Awareness Campaign, National Lichen Sclerosus Support Group and the National Vulvodynia Association
Group structure
The
group is run by committee but we take into consideration the views of all group
members in the decision-making process. We are a self-funded organisation and
rely on donations to cover our running costs, we charge £3 per person per meeting
to cover hall hire (£5 if we have a guest speaker), but if you are unable to contribute you will still be very welcome.
We work towards increasing awareness of the LVPSG and vulval pain within the medical profession, the media and most importantly among sufferers of the condition.
We'd like to thank David Nunns who is our medical advisor, for all his help and support.